Who we are

Cure KARS – Laia Foundation was founded in 2025 by Almudena Velasco and Pablo Garrigós after their daughter Laia was diagnosed with a KARS mutation at the age of 9 months. After reaching out to several families, other patient organisations and researchers around the globe, Pablo and Almudena understood that neither a cure nor treatment existed for their child. Thus, they committed to working, in collaboration with scientists, to support research. The Cure KARS – Laia foundation aspires to stimulate research that will yield effective treatments and ultimately a cure for the KARS1 mutation.